mothers day hd crying

1 20 pm Mother dat started present then pancakes Beth and and were out side put some of my garden things up tim and wyatt was in kitchen Beth asks for ziplock ties tim yells busy so tell Beth not to bother. I feel like crying he snapped on mothers day so I went to my room. He brought pancakes to my room I told I not eating i need to calm down he leaves. About 2pm I go to the fridge to eat my pancakes and see he hasn't put them in fridge 

So I go out and ask he what happened he said it was warm with icecream so he couldn't save them. So got back to room not too be a bother to anyone. 

Mother day tim snaps he thinks there isn't a problem so it 

250pm still in.my room tim came in and ask if I needed anything I said no he doesn't even understand so I told him he yelled at me and I said no I didn't then we had a fight again he said it's always he fault.  Why can't he see no matter we were he should of yelled he said he yelled from kitchen he was busy were i thought he snapped at us. Is he right and yelling from kitchen to lounge room is OK. Or I'm right he shouldn't yelled because I thought he snapped at me. 

So once again 3pm on Mother day still wanting to cry.  Straving because I haven't eaten today. I just to be over not how I thought today would be.  I don't want to leave my room because of them

 I sick of Facebook but don't want to watch TV. Over hearing tim and kids having fun music. I don't want to breathe fuck hd and emotions mood swings. 

huntington disease awareness month

hd photo progress

I'm 41 now my face looks much older just like my mum face changed 

my family hd symptoms and people

Nanny 52 ,jen 49 ,grandmother 50, great/grandfather 53 all died it hit our family really fast . My siblings and 1have been hd symptoms for over 10 years some 15 years.  Once nanny and jen turned 40 everything got worst like the rest of us

Byron not calling me for my birthday I'm done

Byron Colley if I am your mum, aren't I even worth a phone call? After all these years you been living with Lucy. No txt/calls commutation I sick of txting and you never replying I'm sick of not feeling like your mother. I sick of you rejecting me ,I been talking with Dr Scott about your uncaring disrespect behaviour. Not ring me for my bday not caring when I txt you, I'm done I can't have you ribbing my heart out everyday. Top it of I don't even have your new number. I try so many times to tell you and commute with you but not don't give a shit about any of us. I can't walk without out falling I can't even eat my birthday cake without choking 😭😭 I'm getting so worse with my hd. And you don't know or care because your not around. I don't have long everyone said gave you time to grow up but it late I'm done feeling unloved. I so ashamed of your behaviour. I going to put my love and care for my 3 kids who talk to me every day. Who tell me everyday they love me. Goodbye Byron your not my son I would say don't talk to me but haven't in years.

when I'm gone

Being in afterlife is the most content peacefully place I'm ok take care of each other family is everything 

When I'm gone remember I'm at peace in the afterlife. That I'm not hurt anymore my body is healthy and my mind is happy. Picture me with all our loved ones at peace, being loved, being hugged. Being together doing things peacefully. I'm going to watch over you until we are together again. I will be right next to you always, always in your heart. I will watch you grow and always be with you. I'm watching every moment in all your lives. I'm always proud of you all my wonderful children. When I'm gone grieve but life goes so fast you will always miss me the pain does get better over the years but you will be sad and miss me and my hugs. Be brave be strong. I will love you all until the day after tomorrow love mama xoxo

huntingtons disease awareness month may 4

More huntingtons disease information 

huntingtons disease awareness month may 3

Welcome to Huntington's disease (HD) Awareness Month. 

May is a month for the global HD community to unite together to raise awareness for Huntington’s Disease. We work together to create awareness, educate the community and advocate for better supports and services.

During the month of May we are holding community events such as the High Tea 4 HD, Light It Up 4 HD, and Mother's Day Flower Stalls. If you'd like to find out more about our events, please email fundraising@huntingtonsaustralia.au

#KnownRareDisease #HuntingtonsDisease #neurodegenerativediseases #neurologicalcondtions #LightItUp4HD #HighTea4HD #LetsTalkAboutHD

huntingtons disease awareness month day 1 may

Starting tomorrow night as part of Huntington's disease (HD) awareness month we are participating in the international campaign #LightItUp4HD in which landmark buildings and bridges are lit up around the world in blue and purple lights.

Below is a list of some of the locations - we will post more tomorrow!

To see the full list visit https://huntingtonsaustralia.au/light-it-up-4-hd

If you are out about, take photos and share on social media, we would love to see them so make sure to tag us #huntingtonsaustralia #LightItUp4HD 

Friday May 3

🔹 ACT - The Royal Australian Mint

🔹 QLD - Brisbane -  Story Bridge, City Hall & King George Square, Reddacliff Place, Victoria Bridge, Breakfast Creek Bridge and Wickham Terrace Car Park Architectural Wall 

🔹 WA - Perth - Matagarup bridge, Sky Ribbon bridge, Mount Street Pedestrian bridge, Northbridge tunnel, Joondalup Drive bridge

🔹 WA - Geraldton - Queens Park Theatre

Friday May 3 &  Saturday May 4

🔹 WA - Perth - The Bell Tower, Council House, Trafalgar Bridge, Elizabeth Quay, Yagan Square

🔹 WA - Freemantle - Freemantle Prison

🔹 WA - Bunbury - Marlston Hill Lookout, Koombana Bay Footbridge, Arrol Crane at Jetty Road and Koolambidi Woola 

See you tomorrow 🙂

what is huntingtons disease awareness month 2nd day may