Saturday, May 20, 2017

My biggest dream

Cure huntington's disease

Trapped an alone

If feel like no one nos how i feel. How can they understand something i can explain. Is more than depression it my whole essences my brain is broken different. I doing my best but feel helpless. I'm off my depression tablets to find new ones. It's already a hard start to a long journey. I feel alone like no one can understand me. I try so hard too not be like my mum. Her mood swings were awful. I don't want my kids to see me that way but it's happening. I feel lost useless broken unworthy. I don't want to damage my kids. Sometimes even if im trying my best im not strong enough. I have no hope. There is no light at the end of my tunnel. My appointment with hd clinic is the 2nd june. Hopefully a mircle could happen but i highly doubt it. Since i was 16 i have tried so many depression tablets. Hopefully i can male it through the next few months. I hope my relationships will be fine. Its hard for the kids to understand why.

Praying for hd cure

With every family member that comes back with a postive my heart opens and prayers for a cure even more than before and i thought i wanted a cure heaps already. It's strange. It the 1st family member coming from testing for another generation.
My dearly heavenly Father ,
I pray for a hd cure soon. Please help us. Not just for my family but for the whole hd community around the world. Amen.

Sunday, May 07, 2017

Having a bad hd day

Life is going to quick. I feel like i don't have enough time left.

I couldn't stop crying this morning im so sick of having hd. It hurts all the time.
Most of all i hate my kids are going to have to go through hd shit them selfs.

My children

I hate thinking about what my children what to become for the career. What about if they achieve it then hd takes away their brains and they lost everything they whole dear. I hate huntington's disease has taken so much from me and now it's going to take so much from my children. We need a cure so bad so all the horrible oain will go away